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White paper: Patient-centric real-world evidence

The power of technology in real-world evidence generation In today’s healthcare market, patient-centric evidence is crucial for product differentiation and success.

This white paper discusses the benefits and uses of real-world evidence as well as the power of digital technology in RWE generation.

See here for more of our publications.

Authors

Author profiles can be found on our Who we a re page.

Dr Mark Larkin

September 16, 2025
Publications

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Supporting evidence-generation with expertise

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Estimating health-state utility values for family-caregivers of patients with Duchenne muscular dystrophy using time trade-off valuation

Borecka O, Llewellyn S, Woollacott I, Richardson L, Fellows A, Lawrence J, Bottomley C, Biggane AM (JPRO, 2026)

A Novel International Patient Registry in Chronic Inflammatory Demyelinating Polyneuropathy Linking Clinical and Patient-Reported Outcomes Data: The Vitaccess Real CIDP (VRCIDP) Registry

Bowmar E, Larkin M, Habib A, Di Salvo N, Rajabally Y (AAN 2026)

Impact of Caring for Patients with Monocarboxylate Transporter 8 (MCT8) Deficiency on Caregivers’ Sleep: Results from an International Cross-Sectional Study

Ofori A, Larkin MJ, Georges N (PES 2025)

What is the consistency of response to rimegepant at a group level in the acute treatment of migraine in UK adult patients? Protocol for a real-world, patient-centred study

O’Neil G, Abraham L, Pawinski R, Nakajima K, Bagshaw E, Fellows A, Llewellyn S, Lambru G (EHC, 2025)

Assessment of stable chronic bronchitis improvement with adjunctive long-term Mucinex® use via the cough and sputum assessment questionnaire (CASA-Q)

Divel C, Borecka O, Llewellyn S, Spangenthal S (CHEST, 2025)

Adjunctive long-term use of Mucinex® leading to improvement in stable chronic bronchitis and patient’s quality of life: A case report.

Spangenthal S, Divel C, Borecka O, Llewellyn S (Medical Reports, 2025)

Real-world use of Vitaccess Real™ platform to assess quality of life impact with long-term use of Mucinex® in stable chronic bronchitis

Spangenthal S, Divel C, Borecka O, Llewellyn S (ISOQOL, 2025)

Multiple myeloma caregiver costs and disabilities data for economic modelling and HTA submissions

Alsawady M, Tarnowska R, Kudlac A, Vincent S, Melrose D, Lied-Lied A (ISPOR Europe, 2025)

A targeted review of caregiver experiences of CAR-T therapy in ambulatory settings

Ringland C, Bagshaw E, Llewellyn S, Pugh G (ISPOR Europe, 2025)

Extrapulmonary disease burden and impact of cystic fibrosis (CF) on productivity in people with CF (pwCF) aged >12 years not treated with CF transmembrane conductance regulator modulators (CFTRm): interim analysis (IA) of the HUBBLE study

Elborn S, Mainz J, Abbott J, Carr S, Sole A, Costa S, Ganapathy V, Arteaga-Solis E, Liu J, Yuan J, Thorat T, Llewellyn S, Larkin M, De Iorio F, Kaplowitz H (ITS Annual Scientific Meeting, 2021)

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Patient-reported Outcomes

Translation & Linguistic Validation

Publication Support

Patient & Caregiver Burden Studies

Publications

Blogs

Case studies

White papers

Webinars

Study datasets

Advanced patient-centric, science-driven research

Observational Studies

Qualitative Research

Registries

Health Utilities & Preference Studies

Quantitative Research

Analytics & Data Visualization

Patient-reported Outcomes

Translation & Linguistic Validation

Publication Support

Patient & Caregiver Burden Studies

Publications

Blogs

Case studies

White papers

Webinars

Study datasets

White paper: Patient-centric real-world evidence

Supporting evidence-generation with expertise

Subscribe to Vitaccess

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