Datasets
Our Datasets
Our syndicated patient registries and linked datasets combine patient-reported outcomes with clinical data (where available) to create a rich, pragmatic, longitudinal view of disease, treatment, and quality of life.
By granting access to these resources, we’re not just supporting studies — we’re amplifying impact. Whether you’re in academia or industry, your research can plug into RWE to:
- uncover natural history and unmet needs
- compare therapies in real-life settings
- monitor safety, durability, and long-term outcomes
- integrate patient voice with clinical metrics
Interested in these data? Get in touch to request access.
Rich, real-world data to answer complex questions
With years of experience in running independent, disease-specific registries, we capture both the patient voice and clinical insights at scale. The result? High-quality, pragmatic data that can reveal treatment patterns, highlight unmet needs, and inform research, decision-making, and practices — helping to drive better care and accelerate discoveries that matter.
MyRealWorld MG registry
CMT&Me registry
Charcot-Marie-Tooth disease
Melanoma UK registry
Melanoma
Vitaccess Real MG registry
Myasthenia gravis
~ coming soon
Vitaccess Real CIDP registry
Chronic Inflammatory Demyelinating Polyneuropathy
~ coming soon
Vitaccess Real AFib registry
Atrial Fibrillation
~ coming soon
