Help advance real-world understanding of myasthenia gravis
Join the VRMG clinician network and invite eligible patients to contribute to a long-term registry designed to improve research and patient outcomes.
It takes less than a minute to express interest.
Simply enter your details below and our team will contact you with next steps.
What happens after you register?
Once you submit your interest, our team will guide you through a short four step onboarding process.
Step 1
Review and sign a Confidentiality Disclosure Agreement
Step 2
Complete a feasibility questionnaire
Step 3
Review and sign an agreement
Step 4
Complete a 1-hour virtual training session
You can now start recruiting patients
What participation involves
Clinicians can participate in the registry in one of two ways:
Option 1
- Invite eligible patients with myasthenia gravis to join the registry
- Gain access to registry data for research
Option 2
- Invite eligible patients with myasthenia gravis to join the registry
- Enter clinical data for each patient on an electronic case report form (eCRF) every 6 months
- Gain access to registry data for research
- Receive renumeration
Patients complete surveys independently through the registry platform.
About the VRMG registry
The Vitaccess Real MG Registry is a longitudinal observational registry designed to better understand myasthenia gravis, its treatment, and its impact on patients’ daily lives and quality of life.
The registry combines:
The registry combines:
- Patient-reported outcomes
- Healthcare professional input
- Medical record data
This integrated approach allows researchers to generate a richer understanding of real-world MG outcomes.
Duration: up to 10 years.
Patient eligibility
Patients may participate if they:
- Are 18 years or older
- Have a confirmed diagnosis of myasthenia gravis
- Live in the United States or United Kingdom
- Have access to a smartphone, tablet, or computer
- Are not currently enrolled in a clinical trial at the time of registry enrolment.
Sponsor and Scientific Advisory Board
The Vitaccess Real MG Registry is Sponsored by Vitaccess, a patient-centred research organization based in the United Kingdom.
Our Scientific Advisory Board includes clinical and patient representation, and guides development and management of the registry to ensure it is conducted to the highest level of academic rigor, and in the best interest of patients.
Our Scientific Advisory Board includes clinical and patient representation, and guides development and management of the registry to ensure it is conducted to the highest level of academic rigor, and in the best interest of patients.
Ali Habib, MD
UCI Health, CA
Prof Saiju Jacob
Birmingham University Hospital
Dr Francesco Saccà
University of Naples
Dr Zabeen Mahuwala
UK HealthCare, KY
Dr Kelly Gwathmey
Columbia University
Emma Ward
Patient representative, UK
Amanda Hayes
Muscular Dystrophy UK
Prof Michael Hehir
UVM Health
MGFA
Partner
Vitaccess
Sponsor
