Help advance real-world understanding of CIDP
Join the CIDP clinician network and invite eligible patients to contribute to a long-term registry designed to improve research and patient outcomes.
It takes less than a minute to express interest.
Simply enter your details below and our team will contact you with next steps.
What happens after you register?
Review and sign a Confidentiality Disclosure Agreement
Complete a feasibility questionnaire
Review and sign an agreement
Complete a 1-hour virtual training session
You can now start recruiting patients
What participation involves
Clinicians can participate in the registry in one of two ways:
Option 1
- Invite eligible patients with CIDP to join the registry
- Gain access to registry data for research
- Invite eligible patients with myasthenia gravis to join the registry
- Enter clinical data for each patient on an electronic case report form (eCRF) every 6 months
- Gain access to registry data for research
- Receive renumeration
About the CIDP registry
The Vitaccess Real CIDP Registry is a longitudinal observational registry designed to better understand chronic inflammatory demyelinating polyneuropathy (CIDP), its treatment, and its impact on patients’ daily lives and quality of life.
The registry combines:
- Patient-reported outcomes
- Healthcare professional input
- Medical record data
This integrated approach allows researchers to generate a richer understanding of real-world CIDP outcomes.
Duration: up to 10 years.
Patient eligibility
Patients may participate if they:
- Are 18 years or older
- Have a confirmed diagnosis of CIDP
- Live in the United States, United Kingdom or Germany
- Have access to a smartphone, tablet, or computer
Sponsor and Scientific Advisory Board
The Vitaccess Real CIDP0 Registry is sponsored by Vitaccess, a patient-centred research organization based in the United Kingdom.
Our Scientific Advisory Board includes clinical and patient representation, and guides development and management of the registry to ensure it is conducted to the highest level of academic rigor, and in the best interest of patients.
