The 30th annual ISOQOL conference is taking place in Calgary, Canada, on 18th – 21st October. This year, the theme will be “Quality of Life – making it relevant”, with a focus on identifying the many barriers that limit the use of patient-reported outcomes in day-to-day patient care and formulating practical solutions to overcome those barriers.

Sam Llewellyn, Associate Director of Patient Centered Research and Sally Vincent, Senior Consultant will be attending from Vitaccess.

Sam will be co-presenting with Alice Biggane, PhD, at the Qualitative Research Oral Session [108.5] on Thursday, 19th October, on the topic of ‘Approaches and challenges in developing caregiver vignettes in rare, progressive, and fatal childhood conditions: learnings from vignette development in Duchenne Muscular Dystrophy (DMD)’.

In the presentation they will cover why having vignettes that accurately and meaningfully represent caregivers’ lived experiences is essential to ensuring valid utility values are generated. Collaboration with caregivers and healthcare-professionals, and consideration of payer requirements, are key to overcoming these challenges when developing caregiver vignettes in progressive childhood conditions.

Oral Session 108: Qualitative Research

Session date: Thursday, 19 October 2023
Session time: 5:19 PM – 5:35 PM

Get in touch to find out more or arrange to meet if you’re going to be there too.


For more information about the conference, please visit:

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