How to build a scientific advisory board for digital registries

How to build a scientific advisory board for digital registries

Scientific advisory boards (SABs) are an important part of the governance framework for digital real-world studies. These studies are conceptualized and designed with the purpose of collecting longitudinal data on the real-world experiences of patients, or caregivers...
NICE severity modifier: Not all QALYs are created equal

NICE severity modifier: Not all QALYs are created equal

The UK’s National Institute for Health and Care Excellence (NICE) has published an update to its methods and processes for health technology assessment. The update follows a year-long review and includes a number of significant changes to how innovative...
Validating patient diagnosis in real-world studies

Validating patient diagnosis in real-world studies

When is a patient a patient? Diagnosis “validation” is the part of the recruitment process for patient-/caregiver-reported studies where the eligibility of the prospective participant is verified. This usually includes confirmation that the patient does indeed have a...
Do colors speak louder than words?

Do colors speak louder than words?

We create patient-friendly apps that are accessible to anyone, regardless of nationality or disability. The role of color in app design is a combination of art and science, and requires cross-team collaboration between design and localization. There are many factors...
I have no problems writing this blog TODAY

I have no problems writing this blog TODAY

Exploring the use of EQ-5D “bolt-ons” in our real-world studies When we are designing our real-world studies, the collection of health-related quality of life data is an essential component. Measuring HRQoL means looking at the physical, mental, emotional, and social...
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