Longitudinal real-world evidence in rare diseases

On July 19th, we hosted the 18th  webinar in our “Keeping it real” series.

How to excel at generating longitudinal real-world evidence in rare diseases

Mark Larkin, CEO discussed how to excel at generating longitudinal real-world evidence, with a focus on rare diseases. He covered:

    • The value of longitudinal real-world evidence, especially in rare diseases
    • Considerations for successful planning and execution of longitudinal real-world research
    • Common pitfalls in longitudinal research and how to avoid them.

Watch this webinar that includes a Q&A session on demand at your convenience

Presenters

Presenter profiles can be found on our Who we are page.

  • September 17, 2025
  • Webinars

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