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Real-world patient-reported impact of myasthenia gravis: initial data from the MyRealWorld™ MG study

This poster was presented in October 2021 at the AANEM annual meeting. It shares the initial data from the MyRealWorld™ MG study about the impact of myasthenia gravis on the daily lives of patients.

See here for more of our publications on myasthenia gravis and other subjects.

Authors

Author profiles can be found on our Who we are page.

Dr Mark Larkin

September 3, 2025
Publications

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Supporting evidence-generation with expertise

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What is the consistency of response to rimegepant at a group level in the acute treatment of migraine in UK adult patients? Protocol for a real-world, patient-centred study

O’Neil G, Abraham L, Pawinski R, Nakajima K, Bagshaw E, Fellows A, Llewellyn S, Lambru G (EHC, 2025)

Assessment of stable chronic bronchitis improvement with adjunctive long-term Mucinex® use via the cough and sputum assessment questionnaire (CASA-Q)

Divel C, Borecka O, Llewellyn S, Spangenthal S (CHEST, 2025)

Adjunctive long-term use of Mucinex® leading to improvement in stable chronic bronchitis and patient’s quality of life: A case report.

Spangenthal S, Divel C, Borecka O, Llewellyn S (Medical Reports, 2025)

Real-world use of Vitaccess Real™ platform to assess quality of life impact with long-term use of Mucinex® in stable chronic bronchitis

Spangenthal S, Divel C, Borecka O, Llewellyn S (ISOQOL, 2025)

Multiple myeloma caregiver costs and disabilities data for economic modelling and HTA submissions

Alsawady M, Tarnowska R, Kudlac A, Vincent S, Melrose D, Lied-Lied A (ISPOR Europe, 2025)

A targeted review of caregiver experiences of CAR-T therapy in ambulatory settings

Ringland C, Bagshaw E, Llewellyn S, Pugh G (ISPOR Europe, 2025)

Extrapulmonary disease burden and impact of cystic fibrosis (CF) on productivity in people with CF (pwCF) aged >12 years not treated with CF transmembrane conductance regulator modulators (CFTRm): interim analysis (IA) of the HUBBLE study

Elborn S, Mainz J, Abbott J, Carr S, Sole A, Costa S, Ganapathy V, Arteaga-Solis E, Liu J, Yuan J, Thorat T, Llewellyn S, Larkin M, De Iorio F, Kaplowitz H (ITS Annual Scientific Meeting, 2021)

Patient‑ and Caregiver‑Reported Burden of Transfusion‑Dependent β‑Thalassemia Measured Using a Digital Application

Paramore C, Levine L, Bagshaw E, Ouyang C, Kudlac A, Larkin M (Springer Nature’s, The Patient – Patient-Centered Outcomes Research, 2020)

Patient-reported burden of transfusion-dependent Beta-Thalassemia in the USA and UK measured using a digital app

Paramore C, Helfer J, Levine L, Kousoulakou H, Larkin M (ISPOR EU, 2019)

Deprivation and access to care among patients with melanoma in the UK

Quinn C, Larkin M, Jacobs I, Kandola S, Smoyer K (ISPOR EU, 2022)

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Real-world patient-reported impact of myasthenia gravis: initial data from the MyRealWorld™ MG study

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Real-world patient-reported impact of myasthenia gravis: initial data from the MyRealWorld™ MG study