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Modified Delphi panel on advanced ALK-positive NSCLC patient profiling, treatment landscape, and clinical guidelines in the UK

Patel A, Tsang C, Baig LE, Llewellyn S, Baijal S (BTOG, 2025)

This poster was presented at the British Thoracic Oncology Group conference, 2025. It aims to elicit expert clinical judgements on important factors for treatment decisions in advanced ALK-positive NSCLC, clinical monitoring requirements for treatment, perceived toxicity of ALK-TKIs, best practices in shared decision-making and key clinical priorities.

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Sam Llewellyn

September 16, 2025
Publications

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Supporting evidence-generation with expertise

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CORRELATE-UK Interim analysis: reported consistency of response to rimegepant in acute treatment of migraine in the first four attacks of a prospective real-world study

Nakajima K, O’Neil G, Abraham L, Johnston MC, Kilpatrick S, Cheong C, Fellows A, Petitjean C, Llewellyn S, Randall M, Walker R, Lambru G
(MTIS, 2026)

Interim analysis of CORRELATE-UK: A prospective real-world study of the patient-reported consistency of response to rimegepant in acute treatment of migraine

O’Neil G, Abraham L, Nakajima K, Johnston MC, Kilpatrick S, Cheong C, Fellows A, Petitjean C, Llewellyn S, Lambru G
(AHS, 2026)

Vitaccess Real MG Registry: baseline characteristics and patient-reported outcomes scores from an international Myasthenia Gravis patient registry

Amini F, Bagshaw E, Fellows A, Larkin M, Petitjean C, Gwathmey KG, Mahuwala Z, Sacca F, Habib A, Jacob S (EAN, 2026)

Interim analysis of CORRELATE-UK: A prospective real-world study of the patient-reported consistency of response to rimegepant in acute treatment of migraine.

O’Neil G, Abraham L, Nakajima K, Johnston MC, Kilpatrick S, Cheong C, Fellows A, Petitjean C, Llewellyn S, Lambru G. (AHS, 2026)

Are existing measurement tools accurately measuring health-related quality of life of informal caregivers?

Richards A, Carlton J, Biggane A, Chandler F. (ISPOR Europe, 2025)

Understanding the health-related quality of life (HRQoL) of patients living with dermatomyositis (DM) and polymyositis (PM) – A targeted literature review (TLR) and conceptual model development.

Rana S, Biggane A, Chinoy H, Lawrence J, Vincent S. (Annals of the Rheumatic Diseases, EULAR 2025)Publication: Annals of Rheumatic Diseases

Patient-reported impacts of Atrial fibrillation: a literature-based conceptual model

Knowles O, Lawrence J, Ringland C, Singh P, Llewellyn S. (PROMS, 2026)

Estimating health-state utility values for family-caregivers of patients with Duchenne muscular dystrophy using time trade-off valuation

Borecka O, Llewellyn S, Woollacott I, Richardson L, Fellows A, Lawrence J, Bottomley C, Biggane AM (JPRO, 2026)

A Novel International Patient Registry in Chronic Inflammatory Demyelinating Polyneuropathy Linking Clinical and Patient-Reported Outcomes Data: The Vitaccess Real CIDP (VRCIDP) Registry

Bowmar E, Larkin M, Habib A, Di Salvo N, Rajabally Y (AAN 2026)

Impact of Caring for Patients with Monocarboxylate Transporter 8 (MCT8) Deficiency on Caregivers’ Sleep: Results from an International Cross-Sectional Study

Ofori A, Larkin MJ, Georges N (PES 2025)

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Modified Delphi panel on advanced ALK-positive NSCLC patient profiling, treatment landscape, and clinical guidelines in the UK

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