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Diagnosis validation in patient-centered research

Llewellyn S, Bottomley C, Borecka O (National PROMs Annual Research Conference, 2022)

This poster was presented at the National PROMs Annual Research Conference, 2022. It discusses diagnosis validation in patient-centered research.

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Samuel Llewellyn

Catherine Bottomley

Octavia Borecka

September 16, 2025
Publications

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Supporting evidence-generation with expertise

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Estimating health-state utility values for family-caregivers of patients with Duchenne muscular dystrophy using time trade-off valuation

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A Novel International Patient Registry in Chronic Inflammatory Demyelinating Polyneuropathy Linking Clinical and Patient-Reported Outcomes Data: The Vitaccess Real CIDP (VRCIDP) Registry

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Impact of Caring for Patients with Monocarboxylate Transporter 8 (MCT8) Deficiency on Caregivers’ Sleep: Results from an International Cross-Sectional Study

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What is the consistency of response to rimegepant at a group level in the acute treatment of migraine in UK adult patients? Protocol for a real-world, patient-centred study

O’Neil G, Abraham L, Pawinski R, Nakajima K, Bagshaw E, Fellows A, Llewellyn S, Lambru G (EHC, 2025)

Assessment of stable chronic bronchitis improvement with adjunctive long-term Mucinex® use via the cough and sputum assessment questionnaire (CASA-Q)

Divel C, Borecka O, Llewellyn S, Spangenthal S (CHEST, 2025)

Adjunctive long-term use of Mucinex® leading to improvement in stable chronic bronchitis and patient’s quality of life: A case report.

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Real-world use of Vitaccess Real™ platform to assess quality of life impact with long-term use of Mucinex® in stable chronic bronchitis

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Multiple myeloma caregiver costs and disabilities data for economic modelling and HTA submissions

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A targeted review of caregiver experiences of CAR-T therapy in ambulatory settings

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Extrapulmonary disease burden and impact of cystic fibrosis (CF) on productivity in people with CF (pwCF) aged >12 years not treated with CF transmembrane conductance regulator modulators (CFTRm): interim analysis (IA) of the HUBBLE study

Elborn S, Mainz J, Abbott J, Carr S, Sole A, Costa S, Ganapathy V, Arteaga-Solis E, Liu J, Yuan J, Thorat T, Llewellyn S, Larkin M, De Iorio F, Kaplowitz H (ITS Annual Scientific Meeting, 2021)

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Diagnosis validation in patient-centered research

Samuel Llewellyn

Catherine Bottomley

Octavia Borecka

Supporting evidence-generation with expertise

Subscribe to Vitaccess

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