30 Years of ISOQOL: Quality of Life – making it relevant
The 30th annual ISOQOL conference is taking place in Calgary, Canada, on 18th – 21st October. This year, the theme will be “Quality of Life – making it relevant”, with a focus on identifying the many barriers that limit the use of patient-reported outcomes in...
MyRealWorld MG study announcement
The MyRealWorld MG study, a longitudinal digital observational study exploring the impact of myasthenia gravis (MG) from the patient perspective, has been run by Vitaccess on behalf of argenx since December 2019. Since then, over 2,400 adults with MG residing across...
Designing patient-centered registries to support regulatory decision-making
According to the FDA, a registry can be defined as “an organized system that collects clinical and other data in a standardized format for a population defined by a particular disease, condition, or exposure”1. Disease registries can be useful ways to: understand the...
Below the surface: NICE’s quality standards in skin cancer
The National Institute for Health and Care Excellence (NICE) is developing guidance to update the quality standard in skin cancer, which covers the prevention, assessment, diagnosis, and management of malignant and non-malignant melanoma. The draft quality standard is...
