Your story can help shape the future of MG research
Join the Vitaccess Real MG Registry and help researchers better understand life with myasthenia gravis – directly from the people who live with it every day. Registering your interest takes less than a minute, and your experience could help improve care for the entire MG community.
Why your voice matters
Living with myasthenia gravis means navigating symptoms, treatments, and daily challenges that may not always be visible to others.
Researchers and healthcare professionals need to understand these real-world experiences to improve care.
By joining the registry, you help ensure that the patient voice is included in future MG research.
Your participation can help researchers learn:
- How MG symptoms affect daily life
- How treatments work outside of clinical trials
- What matters most to people living with MG
What participation looks like
Taking part in the research is simple and designed to fit into your life.
Most surveys take about 10–15 minutes per month.
Sign up
Register your interest and confirm your eligibility.
Review and consent
You’ll receive full information about the registry and can decide whether to participate.
Share your experiences
To take part, you’ll securely connect at least one medical record and begin sharing your experience by completing short online surveys about your symptoms, treatments, and daily life.
How this research helps the MG community
Clinical trials are important, but they don’t always show the full picture of what it’s like to live with MG every day. Your participation helps ensure that research reflects what truly matters to people living with MG.
The Vitaccess Real MG Registry helps fill that gap by combining:
- Patient experiences
- Treatment information
- Quality-of-life data
Helps researchers understand the real-world impact of MG and may support:
- Improved treatments
- Better patient care
- Stronger evidence for future therapies
What's in it for me?
Receive compensation
As a token of appreciation for your valuable participation, you will receive vouchers.​
Access your medical records
With your consent, you can access all your collected healthcare records anytime through a secure patient portal.​
Provide valuable insights
Patient-reported data is the most valuable perspective on the disease, helping researchers discover new treatments and ways to manage MG.​
Be heard
As the real experts of MG, your experiences and insights guide new research and discoveries, potentially changing the course of MG in the near future.
Sponsor and Scientific Advisory Board
Our Scientific Advisory Board includes clinical and patient representation, and guides development and management of the registry to ensure it is conducted to the highest level of academic rigor, and in the best interest of patients.
Ali Habib, MD
UCI Health, CA
Prof Saiju Jacob
Birmingham University Hospital
Dr Francesco SaccĂ
University of Naples
Dr Zabeen Mahuwala
UK HealthCare, KY
Dr Kelly Gwathmey
Columbia University
Emma Ward
Patient representative, UK
Amanda Hayes
Muscular Dystrophy UK
Prof Michael Hehir
UVM Health
MGFA
Partner
Vitaccess
Your privacy comes first
Researchers only receive de-identified information
You can withdraw at any time
Your data is stored securely
Participation is completely voluntary
