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Protocol for the first global study capturing the patient-reported impact of adult-onset leukoencephalopathy with axonal spheroids and pigmented glia (ALSP) in the real-world setting using a smartphone application

Pontius A, Meier A, Papapetropoulos S, Lynch DS, Edwards H, Day L, Llewellyn S, Quinn C (Global Genes RARE Patient Advocacy Summit, 2022)

The first publication from our global ALSP study has been presented at the Global Genes RARE Patient Advocacy Summit, 2022.

See here for more of our publications in other indications.

Authors

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Casey Quinn

September 4, 2025
Publications

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Protocol for the first global study capturing the patient-reported impact of adult-onset leukoencephalopathy with axonal spheroids and pigmented glia (ALSP) in the real-world setting using a smartphone application

Casey Quinn

Supporting evidence-generation with expertise

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