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Patient-reported impact of adult-onset ALSP

Pontius A, Meier A, Papapetropoulos S, Lynch DS, Edwards H, Day L, Llewellyn S, Quinn C (ISPOR EU, 2022)

This poster was presented at ISPOR EU, 2022. It is the protocol for the first global study capturing the patient-reported impact of adult-onset leukoencephalopathy with axonal spheroids and pigmented glia (ALSP) in the real-world setting using a smartphone application.

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Authors

Author profiles can be found on our Who we a re page.

Laura Day

Sam Llewellyn

Casey Quinn

September 17, 2025
Publications

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Patient-reported impact of adult-onset ALSP

Casey Quinn

Supporting evidence-generation with expertise

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