Which data are migraine patient registries collecting? A targeted review

Ofori A, Llewellyn S, Bottomley C, Kousoulakou H (Value in Health, 23(2): S746)

Gamification – the future of real-world patient-reported studies? Analysis of the ethical and legal challenges of applying gamification in observational studies using smartphone apps: a review of the UK and France

Richards A, Bottomley C (Quality of Life Research, 29: S129)



Treatment patterns and healthcare resource use in primary hypercholesterolaemia and mixed dyslipidaemia: results of a UK Delphi panel

Llewellyn S, Bilitou A, Dunton K, Åkesson C, Hall K, Quinn C (EAS, 2020)

Real-world EQ-5D-5L utility values in patients with melanoma derived using a digital ‘bring your own device’ platform

Larkin J, Nuttall G, Cannon D, Au L, Spain L, Hunter N, Turajlic S, Nixon A, Kousoulakou H, Larkin M, Wiseman T (ISPOR US, 2018)

A conceptual framework for the approach to the evluation of oncology survival benefit in health technology assessment

Monnickendam G, Larkin M, Larkin J, Quinn C (ISPOR EU 2020)

Complexities in localizing participant profile survey questions in real-world studies for smartphone apps

Kretz S, Richards A (Quality of Life Research, 29: S135)

Manuscript: The clinical and cost-effectiveness of supplemental parenteral nutrition in oncology

Webb N, Fricke J, Hancock E, Trueman D, Ghosh S, Winstone J, Miners A, Shepelev J, Valle JW (ESMO Open. 2020 Jun 1;5(3):e000709)

What role does caregiver burden play in health technology assessment bodies’ appraisals of highly specialized technologies?

Ofori A, Llewellyn S, Bottomley C, Kousoulakou H (ISPOR EU 2020)

Challenges with using paper format legacy Patient Reported Outcome Measures (PROMs) in digital real-world evidence (RWE) studies for apps

Kretz S, Spinage C, Bottomley C (Quality of Life Research, 29: S137)

Sickle cell disease patient registries are not collecting enough data

Llewellyn S, Doe A, Åkesson C, Kousoulakou H, Quinn C, Larkin M (ISPOR US 2020)

real progress, together

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