VITACCESS ABSTRACT ACCEPTED FOR PROMS CONFERENCE IN JUNE
The PROMs Research Conference takes place at the University of Birmingham on 20 June. PROMs – patient-reported outcomes measures – is a key focus of our work and the Vitaccess MyRealWorld™ digital platform. PROMs measure patients’ experience of the impact of a disease and its treatment, reported directly by the patient, not the clinician. This perspective is becoming increasingly important to understand the quality of patients’ lives and to inform decisions about healthcare. The PROMs Research Conference will bring together leading international experts, clinicians and patient partners to engage with the latest advances in the field of PROMs research and implementation. It will be a great opportunity for Vitaccess to showcase its MyRealWorld™ digital platform, which people living with melanoma are using to record the impact of melanoma and its treatment on their lives.
The MyRealWorld™ app has been developed in close collaboration with the patient advocacy organisation, Melanoma UK. Participants in the ongoing registry study install the app on their own smartphone or tablet (known as “bring your own device” technology) and complete questionnaires and surveys at their convenience. Data are immediately submitted to a central data platform, allowing users to see and analyse the aggregated data in close to real time.
The platform collects rich demographic and epidemiology data across all stages of disease, treatment, and beyond, and is accruing participants at a steady rate. The monthly survey that participants complete using the MyRealWorld™ app includes PROMs. Whilst such data are increasingly collected in clinical trials, this is one of the first registries to collect such data in a real-world setting. This research will provide key information about the full cohort of patients encountered in clinical practice, ensuring that the patient perspective is at the heart of health research.
This is the abstract we will be showcasing at the conference:
Real-world HRQL in patients with melanoma derived using a digital ‘bring your own device’ platform: analysing health-related quality of life (HRQL) data collected in the real-world setting in patients with melanoma, using the European Organisation for Research and Treatment of Cancer Core Quality of Life questionnaire (EORTC QLQ-C30), an oncology-specific questionnaire via a digital real-world evidence app, and identifying key determinants of HRQL
Do come and see us to find out more, and contact us if you would like to meet up at the conference or with questions about our ongoing study. For information about subscribing to the melanoma registry, please contact firstname.lastname@example.org.