CMT&ME scientific advisory board (SAB)

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 Sponsored by Pharnext, the CMT&Me international observational study of the impact of Charcot-Marie-Tooth on people’s daily lives is led in partnership with a carefully selected Scientific Advisory Board.

CMT&Me SAB brings together strong clinical representation, patient advocacy organizations, with support from patient-reported outcome (PRO) and technical experts.

CHAIR

Prof. Tjalf Ziemssen - University of Dresden, Germany

CLINICAL LEADS

FRANCE

Prof. Shahram Attarian - CHU de Marseille – Hôpital de la Timone, Marseille

GERMANY

Prof. Peter Young - University Hospital Münster

ITALY

Prof. Gian Maria Fabrizi - University of Verona

SPAIN

Prof. Teresa Sevilla - Hospital Universitari i Politècnic La Fe., Valencia

UNITED KINGDOM

Prof. Yusuf Rajabally - University Hospitals Birmingham

UNITED STATES

Prof. Florian P. Thomas - Seton Hall-Hackensack Meridian School of Medicine

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PAO Representatives

FRANCE

Daniel Tanesse - CMT France

GERMANY

TBC - DGM

ITALY

Filippo Genovese - ACMT-Rete

SPAIN

Cristina Fuster Checa - Federacion ASEM

Yasmina Pagnon - Federacion ASEM

UNITED KINGDOM

Debbie Delves - CMT UK

Karen Butcher - CMT UK

UNITED STATES

Allison Moore - HNF Foundation

Amy Gray - CMTA

GENERAL

M. Xavier Paoli - Pharnext representative

Dr Youcef Boutalbi - Pharnext representative

Dr Mark Larkin - Vitaccess Ltd technical expert

 
 
 

DATA ACCESS

 

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