CHARCOT-MARIE-TOOTH PUBLICATIONS

Disease burden and quality of life in patients with Charcot-Marie-Tooth disease type 1A, 2, 4 and X in Europe and the US measured using a digital app

Ziemssen T, Thomas FP, Sivera R, Saporta M, Genovese F, Gray A, Hollett C, Moore A, Rego M, Boutalbi Y, Monteiro K, Paoli X, Hall K, Llewellyn S, Larkin M, Ouyang C, Quinn C (Muscle & Nerve, 62: S69-S70)

MANUSCRIPT: Patient-reported impact of Charcot-Marie-Tooth disease: protocol for a real-world digital lifestyle study

Thomas FP, Saporta M, Attarian S, Sevilla T, Mascaró RS, Fabrizi GM, Genovese F, Gray A, Bull S, Tanesse D, Rego M, Moore A, Hollett C, Monteiro K, Paoli X, Llewellyn S, Larkin M, Boutalbi Y (Neurodegenerative Disease Management, 2021; 11(1): 21-33)

Patient-reported symptom burden of Charcot-Marie-Tooth disease Type 1a in Europe and the US measured using a digital app

Thomas FP, Attarian S, Gray A, Hollett C, Moore A, Boutalbi Y, Monteiro K, Paoli X, Hall K, Llewellyn S, Ouyang C, Larkin M (Value in Health, 23(1): S343)

Patient-reported burden of Charcot-Marie-Tooth disease Type 1a In Europe and the US measured using a digital app

Thomas FP, Attarian S, Gray A, Hollett C, Moore A, Boutalbi Y, Monteiro K, Paoli X, Hall K, Llewellyn S, Ouyang C, Larkin M (Value in Health, 23(1): S343-344)

Productivity losses in people with Charcot-Marie-Tooth disease in the EU and US: interim results from an international digital real-world evidence study

Ziemssen T, Thomas FP, Attarian S, Sevilla T, Gray A, Hollett C, Moore A, Bertrand V, Boutalbi Y, Larrazet M, Monteiro K, Paoli X, Llewellyn S, Bagshaw E, Kousoulakou H, Larkin M (ISPOR Europe, 2019)

Healthcare resource use in Charcot-Marie-Tooth disease in the EU and US: interim results from an international digital real-world study

Ziemssen T, Thomas FP, Attarian S, Sevilla T, Gray A, Hollett C, Moore A, Bertrand V, Boutalbi Y, Larrazet M, Monteiro K, Paoli X, Bagshaw E, Kousoulakou H, Larkin M (ISPOR Europe, 2019)

Demographics and treatment patterns for Charcot-Marie-Tooth disease in the EU and US: interim results from an international digital real-world study

Ziemssen T, Thomas FP, Attarian S, Sevilla T, Gray A, Hollett C, Moore A, Bertrand V, Boutalbi Y, Larrazet M, Monteiro K, Paoli X, Bagshaw E, Kousoulakou H, Larkin M (ISPOR Europe, 2019)

Diversity in the Charcot–Marie–Tooth disease population in the United Kingdom and United States: insights from a digital real-world observational study

Ziemssen T, Thomas FP, Attarian S, Sevilla T, Gray A, Hollett C, Moore A, Bertrand V, Boutalbi Y, Larrazet M, Monteiro K, Paoli X, Llewellyn S, Bagshaw E, Kousoulakou H, Larkin M (ISPOR Europe, 2019)

Treatment of the Charcot-Marie-Tooth disease population in the United Kingdom and United States: insights from a digital real-world observational study

Ziemssen T, Attarian S, Thomas FP, Moore A, Tanesse D, Paoli X, Bertrand V, Boutalbi Y, Monteiro K, Bagshaw E, Kousoulakou H, Larkin M (AANEM, 2019)

Treatment patterns for Charcot-Marie-Tooth disease in the UK and US: insights from a digital real-world observational study

Ziemssen T, Attarian S, Thomas FP, Moore A, Tanesse D, Paoli X, Bertrand V, Boutalbi Y, Bagshaw E, Kousoulakou H, Larkin M (EAN, 2019)

Care standards for Charcot-Marie-Tooth disease in the UK and US: insights from a digital real-world observational study

Ziemssen T, Attarian S, Thomas FP, Moore A, Tanesse D, Paoli X, Bertrand V, Boutalbi Y, Bagshaw E, Kousoulakou H, Larkin M (EAN, 2019)

Diversity in the Charcot-Marie-Tooth disease population in the UK and US: insights from a digital real-world observational study

Ziemssen T, Attarian S, Thomas FP, Moore A, Tanesse D, Paoli X, Bertrand V, Boutalbi Y, Bagshaw E, Kousoulakou H, Larkin M (EAN, 2019)

Digitally assessed real-world diversity in people with Charcot-Marie-Tooth disease in the UK and US

Ziemssen T, Attarian S, Thomas FP, Moore A, Tanesse D, Paoli X, Bertrand V, Boutalbi Y, Bagshaw E, Kousoulakou H, Larkin M (PNS, 2019)

 

Digitally assessed patient-reported real-world care standards for Charcot-Marie-Tooth disease in the UK and US

Ziemssen T, Attarian S, Thomas FP, Moore A, Tanesse D, Paoli X, Bertrand V, Boutalbi Y, Bagshaw E, Kousoulakou H, Larkin M (PNS, 2019)

Patient-reported real-world care standards for Charcot-Marie-Tooth disease in the UK and US assessed using a digital ‘bring your own device’ platform

Ziemssen T, Attarian S, Thomas FP, Moore A, Tanesse D, Paoli X, Bertrand V, Boutalbi Y, Bagshaw E, Kousoulakou H, Larkin M (ISPOR US, 2019)

Patient-reported real-world treatment patterns for Charcot-Marie-Tooth disease in the UK and US assessed using a digital ‘bring your own device’ platform

Ziemssen T, Attarian S, Thomas FP, Moore A, Tanesse D, Paoli X, Bertrand V, Boutalbi Y, Bagshaw E, Kousoulakou H, Larkin M (ISPOR US, 2019)

Development of a digital app and innovative recruitment for an international real-world observational study in Charcot-Marie-Tooth disease

Ziemssen T, Attarian S, Thomas FP, Tanesse D, Paoli X, Bertrand V, Boutalbi Y, Kousoulakou H, Larkin M (ISPOR Europe, 2018)

Skip to content