Charcot-Marie-Tooth DISEASES Dataset
The CMT&Me app is an international, observational, non-interventional, longitudinal study that gathers data regarding the impact of Charcot-Marie-Tooth and drug treatment in the real world. The Charcot-Marie-Tooth dataset is available to researchers to further the knowledge of CMT and improve patient care. For more information, see here.
Access to this dataset allows researchers to use the MyRealWorld™ platform for interactive dashboards and export the dataset, and various selected cohorts, in .csv format. Dashboards include interactive figures and summary tables for demographics, treatment patterns and PRO instruments that measure the health-related quality of life and symptoms of study participants.
Applications to access the anonymized, aggregated dataset can be made to the study’s scientific advisory board by filling out the Charcot-Marie-Tooth data request form. Once applications have been approved, researchers can access the dataset here.
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