CMT&ME SCIENTIFIC

ADVISORY BOARD

Sponsored by Pharnext, the CMT&Me international observational study of the impact of Charcot-Marie-Tooth on people’s daily lives is guided by an expert Scientific Advisory Board, comprising clinicians, patient advocacy organizations and with support from patient-reported outcome and technical experts.

CHAIR

Prof. Mario Saporta, University of Miami Miller School of Medicine

CLINICAL LEADS

FRANCE

Prof. Shahram Attarian, CHU de Marseille, Hôpital de la Timone, Marseille

ITALY

Prof. Gian Maria Fabrizi, University of Verona

SPAIN

Prof. Teresa Sevilla, Hospital Universitari i Politècnic La Fe., Valencia

Dr Rafael Sivera Mascaro, Hospital Universitari i Politècnic La Fe., Valencia

USA

Prof. Florian P. Thomas, Seton Hall-Hackensack Meridian School of Medicine

PATIENT ADVOCACY GROUPS

FRANCE

Daniel Tanesse, CMT France 

GERMANY

Dr Ingolf Pernice, DGM

ITALY

Filippo Genovese, ACMT-Rete

SPAIN

Manuel Rego, President Federacion ASEM

UK

Simon Bull, CMT UK

USA

Allison Moore, HNF

Courtney Hollett, HNF

Amy Gray, CMTA

SPONSOR

Xavier Paoli, Pharnext 

Dr Youcef Boutalbi, Pharnext 

 

TECHNICAL

Dr Mark Larkin, Vitaccess

Sam Llewellyn, Vitaccess

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