CMT&ME SCIENTIFIC
ADVISORY BOARD
Sponsored by Pharnext, the CMT&Me international observational study of the impact of Charcot-Marie-Tooth on people’s daily lives is guided by an expert Scientific Advisory Board, comprising clinicians, patient advocacy organizations and with support from patient-reported outcome and technical experts.
CHAIR
Prof. Mario Saporta, University of Miami Miller School of Medicine
CLINICAL LEADS
FRANCE
Prof. Shahram Attarian, CHU de Marseille, Hôpital de la Timone, Marseille
ITALY
Prof. Gian Maria Fabrizi, University of Verona
SPAIN
Prof. Teresa Sevilla, Hospital Universitari i Politècnic La Fe., Valencia
Dr Rafael Sivera Mascaro, Hospital Universitari i Politècnic La Fe., Valencia
USA
Prof. Florian P. Thomas, Seton Hall-Hackensack Meridian School of Medicine
PATIENT ADVOCACY GROUPS
FRANCE
Daniel Tanesse, CMT France
GERMANY
Dr Ingolf Pernice, DGM
SPAIN
Manuel Rego, President Federacion ASEM
UK
Simon Bull, CMT UK
USA
Allison Moore, HNF
Courtney Hollett, HNF
Katherine Forsey, CMTA
SPONSOR
Xavier Paoli, Pharnext
Dr Youcef Boutalbi, Pharnext
