CMT&ME SCIENTIFIC

ADVISORY BOARD

Sponsored by Pharnext, the CMT&Me international observational study of the impact of Charcot-Marie-Tooth on people’s daily lives is guided by an expert Scientific Advisory Board, comprising clinicians, patient advocacy organizations and with support from patient-reported outcome and technical experts.

CHAIR

Prof. Mario Saporta, University of Miami Miller School of Medicine

CLINICAL LEADS

FRANCE

Prof. Shahram Attarian, CHU de Marseille, Hôpital de la Timone, Marseille

ITALY

Prof. Gian Maria Fabrizi, University of Verona

SPAIN

Prof. Teresa Sevilla, Hospital Universitari i Politècnic La Fe., Valencia

Dr Rafael Sivera Mascaro, Hospital Universitari i Politècnic La Fe., Valencia

USA

Prof. Florian P. Thomas, Seton Hall-Hackensack Meridian School of Medicine

PATIENT ADVOCACY GROUPS

FRANCE

Daniel Tanesse, CMT France

European CMT Federation

GERMANY

Dr Ingolf Pernice, DGM

Deutschen Gesellschaft für Muskelkranke e.V.
ITALY

Filippo Genovese, ACMT-Rete

ACMT Rete
SPAIN

Manuel Rego, President Federacion ASEM

Federacion ASEM

UK

Simon Bull, CMT UK

Charcot-Marie-Tooth UK
USA

Allison Moore, HNF

Hereditary Neuropathy Foundation

Courtney Hollett, HNF

Hereditary Neuropathy Foundation

Amy Gray, CMTA

Charcot-Marie-Tooth Association CMTA

SPONSOR

Xavier Paoli, Pharnext 

Dr Youcef Boutalbi, Pharnext 

Pharnext
Pharnext

TECHNICAL

Dr Mark Larkin, Vitaccess

Sam Llewellyn, Vitaccess

Pharnext
Pharnext

Access data

h

Request form

Skip to content