The CMT&Me app is an international, observational, non-interventional, longitudinal study that gathers data from study participants living with Charcot-Marie-Tooth (CMT) disease across Europe and the USA. It explores the impact of CMT and drug treatment in the real world. The dataset is available to researchers to further knowledge of CMT and improve care.
Researchers can access interactive dashboards via Vitaccess Real™ to export the dataset, and various selected cohorts. Dashboards include interactive figures and summary tables for demographics, treatment patterns and patient-reported outcome (PRO) instruments that measure the health-related quality of life and symptoms of study participants.
Applications to access the anonymized, aggregated dataset can be made to the study’s scientific advisory board via the data request form (below). Once applications have been approved, researchers can access the dataset.
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