When entering demographic information, participants registering for multi-country real-world studies typically select their ethnicity from a pre-determined list. Ethnicity can be taken to represent a self-claimed identity encompassing nationality, history, cultural...
Analyzing datasets from our clients’ real-world studies can be complicated. The nature of these studies, and what sets them apart from randomized controlled trials (RCTs) – namely, the flexibility of digital data collection compared with the rigid experimental...
People experience things in a unique way, using their own words and meanings to make sense of what is going on around them. In the case of a health condition or disease, the words and meanings that people use to describe their experiences may differ from those used by...
Scientific advisory boards (SABs) are an important part of the governance framework for digital real-world studies. These studies are conceptualized and designed with the purpose of collecting longitudinal data on the real-world experiences of patients, or caregivers...
When we talk about “user experience” or “UX”, what do we mean? Creating products for patients carries unique and important challenges. Even within a single condition, identifying a “typical patient” is virtually impossible – users of apps designed for digital...
On March 2, 2022, we held a webinar on the importance of including the caregiver perspective in real-world studies. Here, we delve into some of the ideas that were discussed. What is a caregiver and why are we interested in their perspective? A caregiver can be...
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