How to build a scientific advisory board for digital registries

How to build a scientific advisory board for digital registries

Scientific advisory boards (SABs) are an important part of the governance framework for digital real-world studies. These studies are conceptualized and designed with the purpose of collecting longitudinal data on the real-world experiences of patients, or caregivers...
Why is UX a priority in digital real-world studies?

Why is UX a priority in digital real-world studies?

When we talk about “user experience” or “UX”, what do we mean? Creating products for patients carries unique and important challenges. Even within a single condition, identifying a “typical patient” is virtually impossible – users of apps designed for digital...
NICE severity modifier: Not all QALYs are created equal

NICE severity modifier: Not all QALYs are created equal

The UK’s National Institute for Health and Care Excellence (NICE) has published an update to its methods and processes for health technology assessment. The update follows a year-long review and includes a number of significant changes to how innovative...
Validating patient diagnosis in real-world studies

Validating patient diagnosis in real-world studies

When is a patient a patient? Diagnosis “validation” is the part of the recruitment process for patient-/caregiver-reported studies where the eligibility of the prospective participant is verified. This usually includes confirmation that the patient does indeed have a...
Do colors speak louder than words?

Do colors speak louder than words?

We create patient-friendly apps that are accessible to anyone, regardless of nationality or disability. The role of color in app design is a combination of art and science, and requires cross-team collaboration between design and localization. There are many factors...
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