Translation of ethnicity lists in multi-country real-world studies

Translation of ethnicity lists in multi-country real-world studies

When entering demographic information, participants registering for multi-country real-world studies typically select their ethnicity from a pre-determined list. Ethnicity can be taken to represent a self-claimed identity encompassing nationality, history, cultural...
How to identify obstacles in RWE analytics – and overcome them

How to identify obstacles in RWE analytics – and overcome them

Analyzing datasets from our clients’ real-world studies can be complicated. The nature of these studies, and what sets them apart from randomized controlled trials (RCTs) – namely, the flexibility of digital data collection compared with the rigid experimental...
It’s good to talk: the value of qualitative research

It’s good to talk: the value of qualitative research

People experience things in a unique way, using their own words and meanings to make sense of what is going on around them. In the case of a health condition or disease, the words and meanings that people use to describe their experiences may differ from those used by...
How to build a scientific advisory board for digital registries

How to build a scientific advisory board for digital registries

Scientific advisory boards (SABs) are an important part of the governance framework for digital real-world studies. These studies are conceptualized and designed with the purpose of collecting longitudinal data on the real-world experiences of patients, or caregivers...
Why is UX a priority in digital real-world studies?

Why is UX a priority in digital real-world studies?

When we talk about “user experience” or “UX”, what do we mean? Creating products for patients carries unique and important challenges. Even within a single condition, identifying a “typical patient” is virtually impossible – users of apps designed for digital...
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