Why is UX a priority in digital real-world studies?
When we talk about “user experience” or “UX”, what do we mean? Creating products for patients carries unique and important challenges. Even within a single condition, identifying a “typical patient” is virtually impossible – users of apps designed for digital...
Why is the caregiver perspective more important than ever in real-world studies?
On March 2, 2022, we held a webinar on the importance of including the caregiver perspective in real-world studies. Here, we delve into some of the ideas that were discussed. What is a caregiver and why are we interested in their perspective? A caregiver can be...
NICE severity modifier: Not all QALYs are created equal
The UK’s National Institute for Health and Care Excellence (NICE) has published an update to its methods and processes for health technology assessment. The update follows a year-long review and includes a number of significant changes to how innovative...
Validating patient diagnosis in real-world studies
When is a patient a patient? Diagnosis “validation” is the part of the recruitment process for patient-/caregiver-reported studies where the eligibility of the prospective participant is verified. This usually includes confirmation that the patient does indeed have a...
